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Wednesday, August 24, 2011


First of all, sorry for not keeping followers of this site up to date more frequently that I have done.  I guess in part that is a good thing as my wife, Allison, is overall doing well.  There are still ups and downs despite the frequent infusions that she receives throughout the year.  Right now, she is on average completing a 3 consecutive day 4 hour infusion of 240mg of ketamine about 4-6 weeks apart.  Thank God insurance covers these costly visits!

The thing about the whole issue is that my wife does more than she should but who could blame her after not being able to do much of anything for the past 15 years of her life.  Since her 5 day inpatient procedure last June 2010, she has lived a new life but at times puts too much on her plate as she "feels good" and will do whatever she wants to do.  It finally catches up with her and begins feeling the "burn" thus needing infusion treatments.  She has yet to find a balance in her life and does not know her limits until she is in pain.

The most important thing to keep in mind is to do what makes you feel good and that is what she does.  If she needs to take a day off and rest, she does, if she needs to take vicodin, she does, if she feels like she can ride rollercoasters all day, she does.

Live life to the fullest and keep hope alive.  Keep fighting and don't give up hope because once that happens, the fight is lost and RSD will have won.