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Tuesday, January 11, 2011

Update

Thanks for the comments.  I forget to post as often as I had in the past, partly due to the fact that my wife is doing so well following her 5 day ketamine infusion.  I will do better in keeping people updated in our journey.  Yes, Allison is currently on a regimen of having a three consecutive day, 4 hour ketamine infusion of 60mg per hour, every other month.  Her pain levels are very low and she is almost off all pain medication with an exception of a vicodin here or there.  Keep in mind that she still needs to relax and not overdue herself, which is easy said than done since she has been limited for so much of her life in the past 13 plus years.  Her pain doesn't get any higher than a 4 and that is after a week of working.  She mostly hangs around the 1-2 range but is able to do just about anything without over doing it.  She knows her limits, which is good.  There is a possiblity that she will undergoe a second 5 day infusion within the nexy year too knock out the symptoms completely, depending on the recommendations of her doctor's.  The good thing to know is that a huge portion of her procedure was covered by insurance after going through the appeals process.  We even had enough money through our fundrasing efforts to make a donation the the Neurology Department at Drexel University for continuing there research to find a cure for RSD.  Good journey.  Keep the faith and know that there is hope.  I would recommend the short journey of the ketamine treatment, even though how mentally exhausting and terrifying it was compared to a lifetime of continuous agony and pain both you and your family members have to deal with emotionally for not being able to help your loved one with RSD and the physical pain they are experiencing everyday of their life.  If your wife is physically healthy regarding her heart and other organ function, I would totally go for it.  Feel free to write anytime and again, I will do my best to keep up on the blog.